ALS Therapy Development Institute: ARC Data
In partnership with Neuromine, ALS TDI shares data from its ARC Study, the longest-running natural history study of ALS. Since 2014, thousands of participants, including people with ALS and gene carriers, have contributed detailed lifestyle data, genetics, biosamples, and multi-omics profiles.
ALS TDI Data Tallies
About ALS TDI
Founded in 1999, the ALS Therapy Development Institute (ALS TDI) is the first and largest nonprofit research institute dedicated solely to discovering effective treatments for ALS.
ALS TDI takes a multifaceted approach to ending ALS—inventing and advancing targeted treatments, identifying causes and risk factors, and cultivating a research ecosystem in which ALS drug development is effective and efficient. In its state-of-the-art labs, ALS TDI researchers drive drug discovery across multiple stages, working to advance the many therapies necessary for addressing the various types of ALS.
ALS TDI’s scientific rigor is demonstrated by a proven track record of helping to advance multiple ALS treatments into human trials. ALS TDI scientists have also authored 30 peer-reviewed publications and have been awarded 13 US drug patents. Fueled by community funding, ALS TDI invests 87 cents of every dollar directly into research.
ARC Study Data via Neuromine
A significant portion of the comprehensive longitudinal data from ALS TDI’s ARC Study (formerly the Precision Medicine Program) is now integrated into the Neuromine platform. This strategic addition provides researchers with streamlined access to harmonized longitudinal clinical data, readily available for analyses.
The inherent value of this integration lies in the ARC Study’s depth and duration, empowering investigations into precise disease trajectories, the identification and validation of critical biomarkers, and the discovery of potential therapeutic targets.
- Surveys
- Electronic Health Records (EHRs)
- Accelerometer Movement Data
- Speech Tracking
- ALSFRS-R
- OMIC Data
- Digital Biomarkers
While the Neuromine integration offers significant access to a substantial portion of the ARC Study’s data, researchers requiring the complete and continuously updated ARC dataset are encouraged to explore the ARC Data Commons.
The ARC Data Commons serves as a comprehensive online portal providing broader and more granular access to the entirety of the ARC Study’s rich and continuously evolving data resources.
To explore the full scope of available data and request access, please visit the ARC Data Commons.