Given a shared interest in advancing ALS research to move quicker on the path to finding treatments or a cure for the disease, we are pleased to announce a collaboration that will bring together the two largest existing clinical and omics data sets relating to ALS. Through support from Microsoft, the comprehensive data collected through ALS Therapy Development Institute’s Research Collaborative (ARC) will be added to Neuromine, doubling the clinical and genomic data available for research on Azure.
The data is here.

110T

number of data points released to date – by the program’s end, this will be 150 trillion

1200+

participants, including 200 controls, clinical, genomic, transcription, and protein expression data types collected

100%

data generated by Answer ALS is being made available to the global research community

Metadata & Clinical data

Answer ALS has collected clinical data on 1200+ participants from both control and neurodegenerative disease populations. All data is available to download and has been de-identified according to HIPAA standards. You can download this metadata along with the OMIC data but will need to complete a request access form and sign a data use agreement (DUA) before gaining access, ensuring the integrity and intent of the data provided by the program’s participants. The review process is rapid, with a response typically within the week the request is submitted and the DUA is appropriately signed.
Participant enrollment is complete.

We are currently working toward the data generation phase. 

To learn more about Open Access data, please refer to the frequently asked question “What is the difference between Open Source and Open Access to data?” on our FAQ page.

Request Data Access

Data Dashboard

To learn more about the disease, we enrolled over 1,000 patients. Here is a small sampling of the data we collected. 

Longitude Prize on ALS

This global challenge aims to accelerate the development of breakthrough algorithms that can identify novel drug targets for ALS. Data for the competition is drawn from several leading ALS initiatives, including Answer ALS and the ALS Therapy Development Institute (ALS TDI), providing participants with access to richly detailed clinical and multi-omics datasets to drive innovation and discovery. The Longitude Prize on ALS is designed and delivered by Challenge Works, the global challenge prize experts, part of Nesta, the UK’s innovation agency for social good.

Learn More

A special thank you to each and every one of our program participants and partners.

Please visit our main site to view the full list of our supporters.

The Answer ALS Data Portal Team

OnPoint Scientific

Program Director
Terri Thompson, Ph.D, PMP
terri@onpointsci.com
terri@answerals.org

EPAM Systems

Microsoft